The potential is huge…for all those suffering with a rare disease.
Barth Syndrome Foundation
The European Huntington Association is very interested in the approach taken by BioPontis Alliance. By identifying novel academic science with potential to be converted in a therapy, this nonprofit organization may bring solutions to the needs of patients suffering from a serious and life-threatening neurological rare disease such as Huntington’s. Huntington’s disease is a rather well known rare disease, but still there is insufficient research on potential therapies, so we applaud BioPontis Alliance for taken this systematic approach.
We support the nonprofit BioPontis Alliance and its very unique and innovative approach [to] therapy development and building alliances.
Every child with rare disease deserves a treatment.
Batten Disease Support
& Research Association
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